otherwise entitled: the other half of my heart
Two steps forward, one step back. Working with a child with special needs, this has become the mantra we march to on most of our days. Every day this small boys steals more and more of my heart. I've become quite attached, it would seem. He's my smile in the morning before school, and one of my last cuddles before leaving the compound at 5:30 in the evenings.
More often than not, he can be found chilling in his pac 'n' play-- entertaining himself by looking in his little crib mirror, gazing at the flickering light and spinning ceiling fan, or stripping himself stark naked. haha. His favorite food is spaghetti, the little picky eater. And heaven forbid you try to feed him blueberry flaxseed oatmeal (talk about one of the most distraught, upset looks). He loves Sleeping At Last's song "Saturn" and has yet to fall in love with the complicated melodies of Thomas Newman's pieces. Often his hands flick beneath his chin, as though contemplating deep, deep thoughts. He loves to stare at lightbulbs and the sunshine that filters through the mango trees in the backyard. He'll spin and scooch himself off his colorful foam mats until his feet rest upon the smooth, cool cement floor. Right beneath his ears (near the crook of his neck) you'll find a never-fail tickle spot. There's a 50-50 shot at peek-a-boo making him giggle, or entirely overwhelming him. Humming his little melodies and sounds back to him will make him keep up the charade for a few minutes. And he has the best laugh.
For the first three weeks, I banged a toy rattle on the ground. Desperate to get his attention, I tried just about everything I knew while we sat on the multicolored mats for an hour. I spent late night hours google-searchig and highlighting books, searching for answers. I longed to see that somewhere in those oft vacant-looking eyes there was still a small boy who could be reached, who could interaction and connection and engage. And I cried. Because three weeks in and there was absolutely nothing to show for all our efforts. And yet, no sooner had the tears blurred my vision when he grasped for the toy, threw it over his head, and roared with laughter. Over and over again, we played this game. He spun and patted and found his toy, a mess of giggles all the while. Such utter bliss.
Most days, I still feel like I'm grasping at straws to help him connect and engage this beautiful world around him. What he does one day, he won't show any interest in the next. Few things are consistent-- other than his spaghetti breakfasts, overalls being the one thing he can't wriggle out of, and the way I love him so.
Until you know them, it's easy to look upon the special needs child with a sense of pity. We tend to fail to see the potential because sometimes what one can't do overshadows what wonderful things they are capable of doing. The joy is infinite, and the milestones all that sweeter. We celebrate the small victories... the way he pats my face and pulls for my arms, and how he is finding his voice in that he cries if you try to sit down and hold him at the same time, how his legs fully extend and relax, his scooting off the mats and finding his toy bag, that small bit of weight he'll bear on his half-bent legs. When I see his face, I do not see a child with a disability, labeled by the world as 'different'. The cultures that label such dears ones as 'invaluable' miss. so. much. What he can't do, the ways in which he isn't 'normal' so-to-speak, I hardly even recognize. Because to me he is simply Mikey. I have seen who he is as a person-- fearfully and wonderfully made in the hands of his loving Creator who makes all things good and perfect and beautiful.
Special needs has become a huge part of my heart as the years go on. Two years ago I boarded a plane absolutely terrified.. because special needs?? I wasn't experienced or qualified for that. Little did I know, oh-so little did I know the joy those 6 months would hold. And somewhere along the way, I've become the girl that now prays to see him stand. I whisper it in his ears and pray it as I still his shaking legs with joint compressions... I believe these legs will one day stand. Call it foolish, overzealous, vain. Certainly I have had moments where I feel so naive. But I believe he is fearfully and wonderfully made, I believe in that little heart there's great strength and sheer determination, and I believe in a God who does the seemingly impossible.
Until then, we grasp for toys and track water cups. We lay face-to-face on the dirty foam mats and revel in the joy of the ordinary. I roll the ball and he shows no interest and that's okay. Watching his personality emerge during those afternoon balcony chill-out's has been a most precious treasure. Because in the end it's not about toys grasped or things accomplished. It's believing in being fearfully and wonderfully made, finding the beloved, and reveling in Him calling us so.
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